Thursday, February 23, 2012

A friend with Parkinson's disease

I’m going to talk a lot
So I don’t lose my voice
I’m going to sing LOUD
Or maybe I should get lessons first
I’m going to dance often
So my legs don’t go weak
I’m going to eat right
To make my bones strong
I’m going to make lots of friends
So I can help them to understand
The path they are to make
I will talk with them so their voices don’t go soft
I will sing LOUD with them and we won’t care how bad we sound
I’m going to dance with my new friends
So their legs won’t go weak
Eating often together is the thing to keep our bones healthy and strong
I will take this journey with my friends and we will have plenty of fun
So won’t you be my friend?

Great News

All my testing that was being done for cancer have come out negative.  Yay Me!  More testing in a year to see what that M-spike is doing.

Thanks for all your concerns.

Thursday, February 9, 2012

My Life with Parkinson's disease: Agenda

My Life with Parkinson's disease: Agenda: You wake up before the crack of dawn Just to take your meds so your feet will hit the ground You wait 30 minutes for them to kick in Then yo...

Agenda

You wake up before the crack of dawn
Just to take your meds so your feet will hit the ground
You wait 30 minutes for them to kick in
Then you make your way out of the bed
You slowly walk towards the kitchen
Just to trip over one more toy
One more bruise and one more cut is fine with you
You look at your agenda to see what there is to do
You look at your agenda again
Just to make sure there is not a client name and time
Then you realize, that you haven’t had any appointments like that in such a long time
You look at your agenda and wonder, what you are to do?
Nowhere to run or be there by 9
There is nothing that has to get done
No one to see or nowhere to go
Could it be true, that there is nothing to do?
Your agenda is filled with doctor’s appointments and times to take your meds.
You still wake up before the crack of dawn
And wonder what to do?
You make your way to the porch to listen to the birds and other animals too
Watch the sunrise; and the beauty around and wonder what you will do next
You’ve finished reading one hundred books!
You wake up again before the crack of dawn
Wondering what to do
Could it be true, there is nothing to do?
Just sit back, relax and enjoy this journey
Enjoy the beauty of the sunrise and sunset
Watch the planes and the birds fly by
Smell the flowers and feel the breeze
Call on a friend and have them over to enjoy the beauty that surrounds you daily
Could it be that this is on your agenda?
Wake up before the crack of dawn
Just to watch the sunrise
And end the day with the sunset
That’s what is on my agenda!

Wednesday, February 8, 2012

Hugs!

Give me a hug for it will make me feel better.
Time will heal and a hug will make it go faster.
It will make me forget the pain I’m in and that would be great to forget for one day.
Hugs make you smile and I want to smile for hours.
It’s amazing how a hug can make you feel.
Pull me close and put your arms around me.
Hug me so softly like it’s never going to end
For I need a hug to make me feel better.

Monday, February 6, 2012

Testing, Testing, & more testing

As you know, I am on disability leave and 99% of the time I am inside my home.  On New Years Eve, my husband convinced me to go over to a friends’ house for a party.  I thought it might be good for me to get out, so I didn’t hesitate too much.  I actually had a nice time and even played a little poker.  As I was sitting there, I thought to myself “it’s about midnight and I am with friends, laughing and playing cards.  What a great way to start the New Year.  I hope this means my year will be great and better than 2011.”
During the month of January, I have endured many tests.  I will have either been through lab work or to visit a doctor 10 times.  Yes, 10 times in 31 days.  Okay, I’m not playing and laughing anymore.  My arms have at least been stuck with needles 5 times (great nurses – no marks at all).  I couldn’t tell you how many tubes of blood, I lost count at 8.  I’ve been through general surgery (not liposuction or breast enlargement either).  Bone Marrow and fat pad biopsies where my general surgeries for the month. 
Bone marrow biopsy was done on a Thursday.  Didn’t know much about one so I asked the doctor on a scale of 1 to 10, how much pain should I expect?  He said 5.  I can tolerate pain, so I didn’t think that was too bad.  On that Thursday, I got prepped for the biopsy; however, I would stay awake during this procedure.  I felt the needle go into my back and then felt some pressure of the drilling into my bone.  The worst part was the removal of the fluid.  So which part was a 5?  I think he was talking about the needle part or I’m a wimp.  Breathing and counting helped me make it through this procedure without screaming my head off or knocking his off.  I did get some zanex, but it didn’t take affect until I was about to leave and it made me sleep for 2 days.  I think that is so you can forget about the pain.
My next biopsy was on the following Monday and it was considered general surgery.  They put me to sleep then cut a small slit in my abdomen and cut out a piece of fat.  I’m not sure why they couldn’t just go ahead and take a pound or two.  When I woke up I felt fine.  Doctor said to take Vicodin for pain and do it before the pain gets too bad.  He didn’t say it causes nausea and hot flashes and I mean dripping wet hot flashes.  Plus, all the adventures I took when I was sleeping.  I have now found out among many things, that I can fly, get scared at battle, and that snoring can sound like a helicopter. 
I couldn’t find the humor in this while I was going through it, but looking back makes me laugh at what a wimp I can really be at times. 
So now I will pick myself back up and as my daughter says that I am, I will be strong and not let my struggles get to me.

Sunday, February 5, 2012

Sleep deprived

Sleep deprived
Sleep deprived
Oh, what am I to do
I’m staying awake almost all night long
And only sleeping a couple of hours during the day
Sleep deprived
Sleep deprived
Walking the floors at night
Wondering what to do
Don’t want to wake family so I don’t turn on the lights
Maybe I’ll fall asleep if it stays dark just a few more hours
Sleep deprived
Sleep deprived
Sit in a warm bath to sooth my aching muscles
Relax, relax, relax
Oh, that feels so good
Maybe I’ll just eat one more thing

 in hopes my belly gets full and my mind wander off to sleep
I don’t want to play on computer because it will just wake me up
Stay away from writing since that gets my mind being creative
Sleep deprived
Sleep deprived
Oh what do I do